Source: ME Association News:
Wednesday, 30 July 2008
The latest issue of the ME Association’s quarterly magazine, ME Essential, is landing on members’ doormats this week with an extra heavy thump.
This is because it contains a 24-page printed version of the MEA’s online questionnaire – which is rapidly turning into the biggest-ever survey into what illness management measures work best for people with ME/CFS, those that don’t and the ones that are less successful.
“Online, the survey has been started by 2,400 people so far and it’s got another month to run”, said the ME Association.
“It’s already yielding some fascinating information – including the most up-to-date picture anywhere of what sufferers really think about officially-approved but controversial approaches like Cognitive Behaviour Therapy and Graded Exercise.”
The ME Association said: “Our aim is to produce a fully-informed report on illness management measures which work in the best interests of people with ME/CFS and their carers, and get these views across to the medical establishment, with recommendations for action.”
The main magazine opens with a look at a stunning advertising campaign which blazed a trail for the first-ever ME Awareness Week in Malta – a simple approach, carried out with style and panache, which got islanders and the rest of the ME world looking.
August 3, 2008 at 8:27 pm |
I wish so much the MEA hadn’t changed the name of our illness to the daft ‘opathy’ & did not renew my membership after they did so.