Why psychiatrists should stay well clear of neurological illnesses …

“I think that her illness could be best understood in terms of severe regression and conversion/disassociative disorder.”

• This is the opinion of the psychiatrist who saw SOPHIA MIRZA, who died of ME, an illness he had no clue about.
• Just read his letter on page 17 of the attachment.
• Now why this doc doesn’t have to answer the GMC is a mystery or does CBT rule everything …

A message from Sophia Mirza’s mother …

A message from Sophia’s mother

Today, 9am, sees the launch of a website I have created in memory of my beautiful daughter who died of Myalgic Encephalomyelitis. It deliberately coincides with a conference being held by the Royal Society of Medicine on the subject of ME/CFS to which many psychiatrists and
psychologists have been invited to speak.

ME is a physical illness but the problem facing most ME patients is that a psychological causation of their symptoms is part of the dogma that has been foisted on them by a very small but highly influential group of psychiatrists who have established
a niche market in what is a controversial but highly debilitating illness.

In June 2003 a warrant was granted through Brighton Magistrates Courtthat resulted in the sectioning of my daughter, Sophia Mirza, because she would not accept psychiatric treatment for her physical condition, Myalgic Encephalomyelitis (ME).

Despite our Solicitor being confident that there were no grounds for a warrant to be issued, a warrant was granted and my very ill daughter was sectioned against her will until a Tribunal sanctioned her release almost two weeks later.

My daughter never recovered from the shock of this incarceration and died in November 2005. The coroner’s verdict recorded that she died of CFS/ME.

Six doctors and a social worker were among the people who were involved
in Sophia’s case.

I have tried, without success, to gain justice from the GMC and Social Services over the dreadful treatment my daughter received, but to no avail.

I have written to two Attorney Generals, numerous MPs and solicitors -again with no result. It seems that ordinary people like me and my daughter can be treated in the most appalling way and no-one is accountable.

I have therefore decided to publish all letters and communications appertaining to my daughter’s ordeal at the hands of the authorities, in an effort to ensure that this should never happen again to someone suffering from ME.

I hope that the doctors and social workers involved in my daughter’s care will now reflect on what they did and learn from their mistakes and intransigence. I hope that other professionals will also learn
lessons from what I have published and that …..

Criona Wilson

28th April 2008

Government confirm plans for MRC panel of scientific experts on ME/CFS

• Friday, 25 April 2008

• The Department of Innovation, Universities and Skills

• – which oversees the work of the UK’s Medical Research Council –

• has confirmed plans by The MRC

• for a panel of experts to review the subtypes and causes of ME/CFS………….

Now how many psychiatrists can you GET in one panel about a neurological illness ?????

Can you refuse GET and CBT ???

ME in Parliament

• Countess of Mar:
• “If a group of people refuses graded exercise and cognitive behaviour therapy, on the basis either that they are afraid or that they know it will not help them,
• will they be penalised?”
• Lord McKenzie of Luton (Parliamentary Under-Secretary, Department for Work and Pensions; Labour Peer):
• “there is no requirement for individuals to carry out any specific type of activity or treatment. That cannot be sanctioned”.
  - Hansard Hansard (Lords) on 28th February 2007, column GC198

You can read this and more on page 43 of the INVESTINME newsletter……………

 

The great lie …

RSM conference

The great lie
By: Greg Crowhurst April 15th 2008

The power of the great lie;
as if hustling for a stand
at the Conference
is not a tragedy,
here.

Such is the great lie.

I shout,
this carer,
all alone,
pack it up ,
shred your sad speech,
there is no balance
to be struck
between the
psycho-corporate manipulation of CFS
and the long-denied
person-centred treatment of ME.

The size of the great lie;
it just eats you up.

As she sits
slumps in such pain
that I,
in my poverty,
cannot even touch her,
I am thinking,
what if AfME
was not a part of Westcare,
what if the MEA
was not about an “opathy” ;
dare they,
even now,
combine
influence
and mount the
mother of all protests,
such is the pain we are in ?

In the grip of the great lie.

 

 

Teenage symptoms of chronic fatigue syndrome are in the brain – not in the mind, says Dr James Le Fanu

Dr James Le Fanu, 06/04/2004

• “There can be few more grievous misfortunes than to be struck down by an illness that your doctor does not believe in.
• Most now recognise, albeit belatedly, that chronic fatigue syndrome, or ME, involves a devastating disturbance of the brain’s functioning,
• with severe disruption of sleep patterns and the autonomic nervous system, which controls blood pressure and temperature regulation.
• None the less, some paediatricians – as teenager Jane Fawcett described on last Friday’s page – insist that CFS does not occur in children.
• It defies imagination how any doctor could have attributed her recurrent infections and extreme fatigue (“All I could do was make it downstairs to the sofa and just lie down”) to “school phobia” – but it could have been worse”………….

 

Wessely’s Way …

Margaret Williams and Professor Malcolm Hooper and their latest splendid article regarding the ways of the psychiatric lobby in treating ME….

• These are profoundly serious issues in which Professor Wessely seems to have been shown to be completely wrong,
• yet no-where has it been possible to find a retraction of, let alone an apology for, the incalculable damage that many people believe his misinformed opinions and policies have caused.
• Although psychiatric disorders are diagnosed on opinion and not on a definitive diagnostic test,
• Professor Wessely demands “evidence-based medicine” supported by a definitive test and specific biomarkers before he will accept the reality of ME/CFS.
• Whilst there is as yet no specific diagnostic test, there is an abundance of biomarkers which support the diagnosis,
• but Professor Wessely continues his determined and sustained denial and dismissal of this scientific evidence that clearly proves him to be wrong……….

ME sufferer ’sacked for her illness,’ sues for £100,000

Tuesday, 08 April 2008
From the London Evening Standard, 8 April 2008.

A City worker with ME is suing a private equity fund for more than £100,000 after she was fired for being disabled, an industrial tribunal heard…….

Exercise reduces risk of mental health problems, are you listening professor????

By Amanda Gardner
HealthDay Reporter

“As little as 20 minutes of any kind of physical activity a week helped mental health, although the more vigorous the activity, the greater the benefit, said the authors of a study published online Thursday in the British Journal of Sports Medicine.

The physical benefits of exercise are well known: It reduces the risk of heart disease, type 2 diabetes, high blood pressure and even some cancers, among other things.

The mental benefits are less clear, although exercise is thought to improve blood flow and reduce inflammation, which have been related to depression and dementia. Exercise might also improve mood by reducing stress levels.

“It’s pretty clear that physical activity does have some kind of positive relationship to good mental health,” said Dr. Jane Ripperger-Suhler, assistant professor of psychiatry and behavioral science at Texas A&M Health Science Center College of Medicine and a psychiatrist with Scott & White Mental Health Center in Temple.

Now why does our beloved friend have difficulties with this, just see yesterday’s posting………..

Professor WESSELY at it again…

Etiology of Chronic Fatigue Syndrome: Testing Popular Hypotheses
Using a National Birth Cohort Study.

Journal: Psychosom Med. 2008 Mar 31 (so not neurology …..)

Authors: Harvey SB, Wadsworth M, Wessely S, Hotopf M.

Conclusions: Individuals who exercise frequently are more likely to report a diagnosis of CFS in later life. This may be due to the direct effects of this behavior or associated personality factors. Continuing to be active despite increasing fatigue may be a crucial step in the development of CFS.”

So there is no point in GET then…. is there???? And we are not ill, we just report a diagnosis of CFS, silly b……

And wasn’t the conclusion by the same WESSELY in an earlier article that we were lazy as kids, the man just doesn’t know left from right or anything about ME for that matter ………….